Tuesday, November 13, 2012

My Favorite Freckle

The hospital gowns are quite cozy when you wear two of them

On Wednesday, it will have been a month since surgery. I'm no longer taking pain medication of any sort, even though I'm still uncomfortable a lot of the time. The mobility in my arms has increased significantly, although the left one is lagging a bit, due to the removal of 14 lymph nodes. It's taking a while for the glue left from the surgical tape to come off, because my chest is still very tender, and I can't really scrub it off...but it's slowly washing away to reveal clean skin surrounding the two large scars, where my breasts and nipples used to be.

Before surgery, I half-jokingly asked my surgeon if I'd get to keep my favorite freckle. It sat just to the right of my right breast, just a couple of inches before my armpit. I don't know why, but I always liked it. It was cute. She said I could keep it, and I smiled about it, even though I knew I'd be losing so much more.

As I began my recovery, I could not see whether it was still there, or not, due to the surgical tape. The tape eventually came off, but as mentioned above, the sticky residue lingers. I thought about my freckle, and occasionally wondered if it had survived the operation. As more time passed, I began to think that it was probably gone, and decided to dismiss it.

In this parallel existence, there are days full of color, and days in which it's all been coated in a wash of gray. Both leave me feeling full of experience, but disconnected from the real world. This is not a bad thing, really, but sometimes I need to feel human again. I need to feel like I'm real. The things that bring me that feeling, come in various shapes and sizes, different lengths of time, and some are complete surprises. Sometimes, they snap me into my body with a vividness, and a full breath. Life flows in, clearing the sleep from my perception.

Today, that moment came, after I got out of the shower, and began getting dressed. Before covering my chest, I examined the changes in tape residue, and remembered my long, lost freckle. Looking in the mirror, I turned my attention to where I felt it should be. At first, I didn't see it, but looking more closely, I could see how the shape of everything had changed. The place where my freckle had been was gone, but the freckle itself, had in fact, just moved a little. The tape was clearing from where it now sat, exposing the little brown dot I had periodically wondered about. As I leaned into the mirror, I touched it, and tears came to my eyes. Maybe it's silly that something so small meant so much. It was certainly unexpected...but I cannot describe the relief that washed over me to see that I had one more thing I get to keep. I smiled through happy tears, as I was snapped back into my former self just long enough to really feel alive, and then the vividness rippled, and the haze of non-reality took back over. I came back into my parallel place, carrying a gift to sustain me for the day.

The rest of the day brought a trip to the Cancer Center, with its friendly staff and large, mysterious machines, followed by some bizarre exchanges with friends. There was an argument with one, a misunderstanding with another, and a warm visit with yet, another. All of them ended more positively than they began, which is a good thing, all around. Now, as I should be heading toward bed, I am reviewing the events of the day, and I'm realizing how some of the people in my life have been like my freckle; not always in sight, and sometimes faded from mind as time passes, but no matter the circumstance, the resurfacing is a happy surprise that snaps me back into where I need to be.


There it is!

Thursday, November 1, 2012

Somewhere Between Comedy and Tragedy


We fed each other cake! Photo by FX Vargas

There's something about a warm chai latte, especially this time of year. November is the month for cozy things and savory comfort foods. I'm not entirely certain what this one will bring, but a lot of things are uncertain, these days. This isn't necessarily a bad thing.

Surgery was about two and a half weeks ago, and the time has been intensely full. My mom was here for the first two weeks, and my sister for a few days. It's been a rough recovery, even with the added help. It was only yesterday that I began working toward regaining the use of my arms, and I've been able to pick up Violet a few times. That was the worst part...not being able to pick her up. I'm glad that part is over.

I'm still in pain, but it's getting better, and I'm weaning myself off the narcotics. There's a spot on the back of my left arm, just above the elbow that feels prickly and strange, and my sternum aches. Sometimes, it feels like I still have breasts, until I look down, or touch my chest, then I feel that same prickly sensation, only less intense. There's really nothing there, but two long scars, stretching across the concave places where my breasts once were. I'm nowhere near as horrified as I thought I would be, but it is quite surreal to look at. Every time I undress in the bathroom, I see the strangest reflection in the mirror, and I am instantly transported to some sort of bizarre dream-scape. I'll be attending my first support group meeting, later this month. I had to come to the conclusion that I can't keep doing this on my own. Talking to women who have been here really helps me. I'm ready to reach out.

Even with all of this, there have been wonderful things happening. In the time since surgery, I've had the opportunity to see some incredible musicians perform, and even met a few (including one of my favorites), my beautiful baby turned one (we had one hell of a baby birthday bash), and I celebrated seven years of marriage to my wonderful husband by taking Violet and my youngest stepson out trick-or-treating. It was all very exhausting, and I know I overdid it, but it was so worth it! I got to experience multiple once-in-a-lifetime events, while simultaneously living through one of the most difficult.

With Seth Siro Anton of Septicflesh

That seems to be a recurring theme in my life; the juxtaposition of immense joy and shattering pain. Oddly, I am grateful for both. It's not that I wanted cancer, and I certainly didn't want to watch my brother die, a couple of years ago. So, perhaps I should clarify: I am grateful for the beauty that finds me, even when in the depths of darkness. There is so much to learn from it, and so much to see. I hope I use this time wisely, as there is much that I can glean from this experience. Of course there are times when I fall apart. Who wouldn't? I think falling apart from time to time is just as important as laughing and smiling.

Believe me, I'm not rainbows and sunshine about this, all the time. It is serious, I know. It's also very hard. However, with all the love and support that I receive on a daily basis, it's impossible not to feel humbled, thankful, and warm. When this is over, my next challenge will be in finding the best way to live my life in a manner that fully earns all that I have been given from those who don't have to care, but do, anyway. I've still got a long way to go, before I am done. Again, I hope that I can use this time wisely.

My little faerie-bug!