I knew it had
been some time since I last blogged about anything. Still, I was a bit
surprised to discover how long. So much has happened. So much has changed, I’m
not even quite sure where to begin. I’m still doing chemotherapy and have just
started on two new types, intravenously. I’m bald, with a giant tattoo on my
head. Yes, I said tattoo on my head. So, I suppose I should start there.
I decided that
since I was going to have to be bald again, I should make the best of it. I’d
seen pictures of cancer patients getting elaborate henna tattoos and decided
that a little cranial décor might just suit me. This was during the time in
which I was really focused on manifesting good into my life, mainly with the
intention of completing my Reike Master training in Mt. Shasta on a retreat
that would be sure to change my life.
Financially, the
retreat was looking rather bleak. I had no idea how I was going to raise the
funds I’d need to attend, but I set my energy toward it anyhow. I had to be
there. I had waited and learned, chasing my mastery for several years with many
disruptions and setbacks. It was time to finish the journey. This is where
inspiration for my tattoo came in. I felt something related to the crown chakra
would be perfect with what I was aiming to achieve. I’m not sure at what point
I decided to go from henna to permanent ink, but when I did, it felt perfect.
It felt right. My next task was to find an artist and get a price so I could
start raising the money I’d need. At some point, on the retreat side of things,
an anonymous sponsor who had heard my story came forward and funded half of
what I’d need for the retreat. I was floored. It meant so much that someone out
there, whom I’d never met (to my knowledge, anyhow), cared and believed in me
enough to do such a thing.
I was blessed
in the tattoo department as well. Almost as soon as I made my first Facebook
post asking for advice on where to go, I was gifted the work from the wonderful
Jeremiah “Gingerbeard” Beale out of Holdfast Tattoo in Seaside. He and his
wonderful wife have come through for me in other beautiful ways, too.
Things came
together. My sponsor ended up funding my trip in full, and in two sessions, my
tattoo was completed with only a few weeks until my training. Mt. Shasta and my
training turned out to be a monumentally important and beautiful journey. Even
with all that’s happened since then, I’m immensely grateful for the experience
and always will be.
Shortly after
returning home, I had to go in to see a dermatologist about some strange marks
on my abdomen. A sample was taken, and after a nervous wait, I was informed
that it was more breast cancer…it had spread to my skin. This information
knocked me back, to say the least. I had just returned from a profound,
life-altering, spiritually powerful retreat and training. I knew things would
be different when I returned home, and they were. I was different…I’d been
split in two. I had emerged from my experience as a fully trained healer, and
my cancer was spreading at the same time.
I went through
radiation treatment for it. My discolored abdomen was covered with silver
dollar-sized blisters. I actually went to Faerieworlds with bandages beneath my
corsets. Ironically, the compression helped my burn tremendously!
Any further
pursuits involving Reike had to be placed on hold, as it was apparent that my
health needed to once again take center stage. The next several months are a
tumultuous blur. There were several hospital stays, changes in medications, and
a dangerous drop in weight. My personal life suffered a serious blow when my
father rejoined Facebook.
I won’t go into
too much detail, but after his behavior became abusive, I started to relive the
hell of my childhood and all the abuse he put me through. Looking at all the
years I just wanted him to love me for who I am, I’ve had to come to the
conclusion that he never will. At least this time he was dumb enough to share
his abusive comments publicly on Facebook, so all my friends and family could
see it. I have not read his nasty tear-down as I was strongly encouraged not
to. I did receive a few screen shots of the comments left and updates from
Jesse and a couple of others. I got the “highlights”, if you will. It’s nice to
know my dad thinks I’m so worthless and that I should give up on “reaching for
the brass ring”, no adventures, no getting help. I should just wait at home to
die; this all being communicated between insults and false statements. My
father thought he could tear me down on a public forum, but I’ve come long way
from that frightened child he used to scream at and belittle because I had an
independent way of thinking, and a vagina. I spent a few days crying and
spewing rage at the walls before coming to the conclusion that he had to be
eliminated from my life completely and permanently. It’s been a few months, and
I haven’t had any contact. The more time that passes, the more I feel that it
was the right decision.
Time since then
has been largely spent on a roller coaster. I’ve been in and out of the
hospital quite a bit, and my mother is staying with us for a few months to help
me stabilize. I recently dropped to 108 pounds. My normal weight is 130-135.
Needless to say, things were scary for a while but I feel they’re improving. I
managed to work my way back up to 120lbs and I’m currently working on getting
to 130. I’m on two chemotherapy drugs, one week on, one week off. I’ve also
recently been seeing a naturopathic oncologist along with my regular doctors.
My insurance doesn’t cover it, so I’m having to raise the money to do it. My
mom has been helping a lot. I’m slowly implementing some lifestyle changes. One
of those was to step away from my beloved Krav Maga. It hurts like you wouldn’t
believe. I feel like a piece of my heart has been ripped out and kicked across
the street during rush hour.
Tonight, as I sit
in a dark room at Legacy Hospital in Salmon Creek, I am having to make more
decisions about my treatment that are very emotionally taxing for me. The
cancer has returned to my skin, and it has spread. The fluid around my right
lung is rebuilding at an alarming rate, so it looks like I’ll be having a small
drainage tube in my body, so I can drain it at home and stay out of the
hospital so much. Do I want this? No. No, I do not. When these changes take
place, it feels like the cancer is fighting back and it scares me. I had a
couple of good cries today.
Things have
definitely become strange. I’ve become that sick person that no one wants to
visit. I’ve had a few people come by on occasion, but for the most part, people
tell me to contact them if I need anything. So when I started reaching out for
help, I was met with the sound of crickets. I’m trying not to take it personally.
People have busy lives and I know that seeing a formerly healthy person so weak
with cancer is scary and uncomfortable. It reminds them of their own mortality
and let’s face it; that can be very uncomfortable and kind of scary. It was
really depressing and hard to accept at first, but oddly enough, I’m becoming a
lot more of a hermit. I’m enjoying the solitude more and more. A visit now and
then is okay, but most days, I’d rather be left alone. The solitude has become
my companion, my safety cave. I have my mom, Jesse, and Violet, and really that’s
all I need. This may change at some point, I don’t know. Financially, things
are a disaster. I’ve been too sick to make jewelry, but I think that is going
to improve very soon.
So here we are:
Jesse, Violet, my mom, and myself in a strange situation. I’m not sure what’s
going to happen. I’m doing what I can to get better and they are trying to
help. There are still a lot of changes to be made and I’ve got a lot of old
wounds to heal. Mom is doing her job remotely from the living room, Jesse is
going to school, and Violet is also in school, as well as the Boys and Girls
Club, and karate. Keeping my girl in a routine is important right now. She
needs structure, and I am doing all that I can to provide that for her. That
child amazes me every day. She’s changed so much since starting in
kindergarten. It’s almost like she’s someone else with how quickly she’s
blossoming and I marvel at all that she is.
So yes, it’s
been a year of many changes, and I’m sure it’s not over yet. I work very hard
at being positive and invoking the Law of Attraction into my world. I still
have my days, though. The anger and melancholy still manage to creep in and it
throws me into a hopeless and painful depression. Just today, I had a good cry
about it. I’m determined to live. I’m determined to raise my daughter. I must
win this for her. However, some days, it feels like the Universe just wants to
ty with me and beat me down. I was working so hard at becoming the person I
want to be, and I was getting close. Then, out of nowhere cancer knocked me
back with a critical blow. Sometimes I get so angry. I have never been one who
likes to whine about things being unfair, but well; this is fucking unfair.
There. I said it; and that being said, I think I’m going to take a much-needed
rest and work on how to maneuver my way through this mess. Fair or not, there
are still things I need to figure out and accomplish. Giving up isn’t an
option, no matter how desperately I want to some days. So here I go, one step
in front of the other, one day at a time. There’s a destination in the distance
and I must get there. I must do it for Violet. She is everything to me, and I
must see to it that she goes into life with the same confidence and strength I
see in her every day (even when she’s being a butt, lol)! I just hope I can
pull this off. I don’t have a choice.